Caller: I was in a meeting with CDC officials. A black doctor who works for the CDC said those DNA testing sites are not governed by any HIPAA laws, rules, or regulations. So, if you submit any swabs or any DNA to those sites, they can in turn sell it to a database.
If, for example, a crime is committed, they can take your DNA and run it through the database, to see if you could have possibly committed that crime. If there are no HIPAA laws, that is something that we should really evaluate before submitting to that.
(HIPAA: Health Insurance Portability & Accountability Act, a.k.a. the privacy rule, is the law that protects your privacy as a patient); (CDC: Centers for Disease Control)
(HIPAA: Health Insurance Portability & Accountability Act, a.k.a. the privacy rule, is the law that protects your privacy as a patient); (CDC: Centers for Disease Control)
Karen reminded us of Henrietta Lacks:
The medical industry all over the globe used her cells and made billions of dollars, while her family never knew and were living in abject poverty. (abject: very bad or severe)
The medical industry all over the globe used her cells and made billions of dollars, while her family never knew and were living in abject poverty. (abject: very bad or severe)
Special guest, Nkrumah Farrar, Founder of CRWN Magazine:
When we set out on this journey, we were very serious about ownership. Our platform is a voice for black women. It is important that it's a platform that black women can trust. The waters become murky and it becomes very difficult to know if you can trust who you get your media from because you don't know where their money comes from.
When we set out on this journey, we were very serious about ownership. Our platform is a voice for black women. It is important that it's a platform that black women can trust. The waters become murky and it becomes very difficult to know if you can trust who you get your media from because you don't know where their money comes from.
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